2023 ABCD Annual Curated Data Release 5.0
ABCD Data Release 5.0 has been shared. The ABCD Study® and NDA have changed the way tabulated data are downloaded for the 5.0 release. The imaging and non-imaging tabulated data are packaged as a single .zip file containing all of the relevant tables for the domain. To obtain the data you must be logged into NDA (authenticated). Visit https://nda.nih.gov/study.html?id=2147 and select the “ABCD 5.0 Tabulated Release Data” file in the Results section to download all tabulated imaging and non-imaging 5.0 data. As in past releases, neuroimaging and other file-based data (e.g., genomics; raw behavioral data) are accessible via the NDA download manager tool.
All data access information is documented on the NDA ABCD Featured Dataset page and includes pointers to an external ABCD Study wiki where data release notes and general information about the data resource are provided. All users should review the release notes for detailed information on the released data. Note that with the change to how release notes are made available, they will be updated regularly and thus users are advised to check https://wiki.abcdstudy.org/release-notes/start-page.html for the most up-to-date information. Release notes for qualified users only (i.e., non-public) are available at https://nda.nih.gov/study.html?id=2147. The 5.0 data ontology and dictionary can be viewed at https://data-dict.abcdstudy.org/.
The table below highlights key differences between the 4.0 and 5.0 data releases. Note that the Data Exploration and Analysis Portal (DEAP) has been decommissioned as of June 1, 2023. In addition, study creation no longer works with how the data are shared this year. We anticipate reinstating it with the 6.0 data release.
Data Release 5.0 contains early longitudinal data on the full participant cohort, including 2-year follow-up neuroimaging data (second imaging timepoint), as well as phenotypic data through the 3-year follow-up visits. Interim data are available for the 4-year follow-up visit, including some of the neuroimaging data. Also available are ABCD derived scores from linked external school performance and environmental data, including the Stanford Education Data Archive, EPA Smart Location Database, American Community Survey Area Deprivation Index, FBI’s Uniform Crime Report, lead exposure risk and air pollution indices, among others. Smokescreen genotyping array data with TOPMed imputations are available as well. These include common variations, as well as variations associated with addiction, smoking behavior, and nicotine metabolism.
| Data Release 4.0 | Data Release 5.0 | |
|---|---|---|
| Tabulated data in NDA database | X | |
| Tabulated data on NDA ABCD Study page | X | |
| File-based data available through NDA download manager | X | X |
| Data dictionary explorer application | X | |
| DEAP | X |
Past Data Releases
2021 ABCD Annual Curated Data Release 4.0
The fourth annual curated ABCD Data Release 4.0 is available now on the NIMH Data Archive. In addition to baseline data on the full participant cohort (nearly 12,000 participants), Data Release 4.0 contains early longitudinal data, including 2-year follow-up neuroimaging data (second imaging timepoint), as well as follow-up phenotypic data for the 6-month, 1-year and 18-month visits on the full cohort. Interim data are also available for the 30-month, 3-year and 42-month visits. Smokescreen genotyping array data with TOPMed imputations are available as well. These include common variations, as well as variations associated with addiction, smoking behavior and nicotine metabolism. Also available are ABCD derived scores from linked external school performance and environmental data, including the Stanford Education Data Archive, EPA Smart Location Database, American Community Survey Area Deprivation Index, FBI’s Uniform Crime Report, lead exposure risk and air pollution indices, among others.
Also included in Data Release 4.0 are COVID supplemental survey data, consisting of survey responses from ABCD families about the impact of the pandemic on their lives. Surveys were sent electronically to all ABCD participants and their parent/guardian in May, June, August, October, and December of 2020, and March and May of 2021. Youth and parents/guardians were asked separately about school attendance and activities, sleep, daily routines, physical activity, mental health, screen time, racism/discrimination in relation to COVID-19, COVID attitudes and practices, and coping behaviors. In addition, when site and school closures began in March 2020, ABCD participants who had their ABCD-assigned activity tracker agreed to extend protocol wear of the device, contributing valuable objective physical activity, resting heart rate, and sleep data. Also included are COVID-19 geocoded metrics that describe the local environment for each participant, including unemployment data, COVID-19 prevalence, and social distancing metrics. Authorized users can obtain more information and access the updated data from https://nda.nih.gov/abcd. Full details are in the Release Notes for Data Release 4.0.
2020 ABCD Annual Curated Data Release 3.0
The third annual curated ABCD Data Release 3.0 is available on the NIMH Data Archive. In addition to baseline data on the full participant cohort (nearly 12,000 participants), Data Release 3.0 contains early longitudinal data, including approximately half of the 2-year follow-up neuroimaging data (second imaging timepoint), as well as follow-up phenotypic data for the 6-month and 1-year visits on the full cohort. Interim data are also available for the 18-month, 2-year, and 30-month visits. Smokescreen genotyping array data with TOPMed imputations are available as well. These include common variations, as well as variations associated with addiction, smoking behavior and nicotine metabolism. Authorized users can obtain more information and access the updated data from https://nda.nih.gov/abcd. Full details are in the Release Notes for Data Release 3.0.
ABCD COVID-19 supplemental data release
The ABCD COVID-19 data release consists of survey responses from ABCD families about the impact of the pandemic on their lives. Surveys were sent electronically to all ABCD participants and their parent/guardian in May, June, August and December of 2020. Youth and parents/guardians were asked separately about school attendance and activities, sleep, daily routines, physical activity, mental health, screen time, racism/discrimination in relation to COVID-19, COVID attitudes and practices, and coping behaviors. Importantly, researchers will be able to link data from these surveys to data from the main ABCD study visits, including those that occurred prior to the pandemic. Future releases will include data from subsequent surveys. Visit the NDA website for more information.
2019 ABCD Annual Curated Data Release 2.0
On April 2, 2019, The National Institutes of Health released to the scientific community the comprehensive baseline dataset from the Adolescent Brain Cognitive Development (ABCD) study. Enrollment is complete with a total of 11,878 youth and their families participating in the study, including about 2,100 young people who are twins or triplets.
Approximately 100 terabytes of data obtained from the full participant cohort are available to scientists worldwide to conduct research on the many factors that influence brain, cognitive, social, and emotional development. The ABCD study is the largest long-term study of brain development and child health in the United States.
- Data Release 2.0, available now on the NIMH Data Archive, includes baseline data on the full participant cohort, ages 9-10 years. Last year’s release (Data Release 1.1) contained baseline data on nearly half of the cohort.
- This release includes much of the same type of data as contained in Data Release 1.1, but also includes genotypic data for the first time:
- Genomics data (Smokescreen genotyping array) are available on almost 11,000 participants. These include common variations, as well as variations associated with addiction, smoking behavior and nicotine metabolism.
- Participants will be followed for 10 years, during which data are collected on a semi-annual and annual basis through interviews and behavioral testing. Neuroimaging data, including high resolution MRI, are collected every two years to measure changes in brain structure and function.
- Data will be released annually. The next data release will be in early summer 2020 and will include the first longitudinal data from the 6-month and 1-year follow-up assessments.
- For more information about Data Release 2.0 and to request access to the data, visit the ABCD data collection on the NIMH Data Archive.
2017 ABCD Study Announces Fast Track Data Release
The Adolescent Brain Cognitive Development (ABCD) Study (abcdstudy.org), the largest long-term study of brain development and child health in the United States, has partnered with the NIMH Data Archive (NDA) to share ABCD Study data with the public on an ongoing basis.
This inaugural data release contains unprocessed neuroimaging data from participants aged 9-10 years old, as well as basic participant demographics (age, sex), including:
- High-resolution structural data (3D T1 - and T2-weighted scans)
- Advanced diffusion MRI (multiple b-values and directions)
- Resting State fMRI
- Task fMRI (Monetary Incentive Delay, Stop-Signal, and Emotional N-Back), along with raw E-Prime task files for each fMRI run
Neuroimaging data were collected using a harmonized Human Connectome protocol, developed for the ABCD Study, and supported across all three major MRI scanner platforms (Siemens, General Electric, and Philips). The data in this release are in DICOM format as provided by the MRI scanners and have not undergone quality control or curation. As such, the fast track data are most suitable for technical methods development (e.g., scanner harmonization), as the DICOM images would require pre-processing (e.g., distortion correction, movement correction, alignment) to be suitable for data analysis. Curated data, including all assessment domains and computational analysis pipelines, will be released annually through NDA, starting in December 2017.
The ABCD Study is designed to include a diverse population that reflects the demographics of the U.S., however these interim data may not capture that diversity as enrollment is not yet complete.