New NIH Data Sharing Site
The Office of Extramural Research announces the NIH Scientific Data Sharing website which will serve as a central portal for resources on NIH sharing policies, how to share and submit data, how to access data from NIH-supported repositories, and more!
- Investigators submitting NIH applications are required to include a plan for data sharing or state why data sharing is not possible. General information about the NIH data sharing policy is available at https://grants.nih.gov/policy/sharing.htm.
- For information regarding NIH policies for sharing of genomic data, see https://sharing.nih.gov/genomic-data-sharing-policy.
- For more information on all NIH Data Sharing policies, please see the following spreadsheet https://sharing.nih.gov/other-sharing-policies/nih-institute-and-center-data-sharing-policies.
NIDA Guidance on NIH Data Management & Sharing Policy
- The goal of the NIH Data Management and Sharing Policy is to maximize the availability of data from NIH-supported research to advance NIH’s mission to enhance health, lengthen life, and reduce illness and disability. See NIDA Guidance on NIH Data Management & Sharing Policy for guidance on the NIH DMS Policy and resources to help researchers develop and submit a Data Management and Sharing Plan.
- NIDA requires data for all NIDA-funded human genetics studies to be available for sharing, independent of direct costs, membership in the NIDA Genetics Consortium, or the type of genetics data generated, as outlined in Answers 9-13 of the FAQ at www.nida.nih.gov/researchers/research-resources/genetics-research-resources/frequently-asked-questions-about-nida-ge
NIDA Harmonization for Human Studies
- NIDA developed a series of core elements for assessing and harmonizing demographic information and substance use history for genetic studies. NIDA strongly encourages all applicants to discuss how these core elements are addressed in their data sharing plan by either assessing them directly or indirectly by proxy measures. Other measures can be found in the PhenX Substance Abuse and Addiction Project.